有了ＭＧ后心态的变化 - 重症肌无力病友之家

RECONSTRUCTION 重新塑造
Means returning to the highest level of wellness you are capable of, psychologically and physically. It involves a realisation that inside one does not change because of a diagnosis. If you can only see the disease, you've become blind. Anyone with vision sees the person residing within. All has not been lost. One has to construct a satisfactory self image that incorporates the myasthenia. 意思是回到你在心里上身体上所能达到的健康最高水平.这里包括一个人不因为一个诊断而改变的实现.如果你只看到的是疾病本身,那你是盲目的.任何一个有视力的人看到这个人的所有.所有的都没有丢失.一个人不得不建造一个对待MG的自我满意程度.

The adjustment process may also involve role changes. It may require developing new skills and discovering new satisfying activities. It involves seeking relevant information from doctors, social workers, physical therapists. It involves eliciting reassurance and emotional support from family, friends and medical personnel. It involves pacing oneself and setting realistic goals. It involves identifying one's assets. More importantly, it involves the maintaining of a good sense of humour and the maintaining of hope. This doesn't mean that intermittent setbacks and depression can't or won't occur. 这种调整过程可能也包括角色的转变.这要求掌握新的技能和发现新的令人满意的活动.它包括向医生.社会工作者以及医药人员寻求相关信息.还包括缓慢调整自己,确立新的现实的目标.包括识别自己所拥有的财富.更重要的是,要具备一个很好的幽默感以及要怀有希望.这并不意味着断断续续的复发以及抑郁不可能或不会发生.

Any time there is a worsening of symptoms or hospitalisation, or the anniversary of the day you were diagnosed rolls around, or you visit the doctor, or you see others doing what you can no longer do - you can slip back into turmoil. Having myasthenia can be like riding an emotional roller coaster; one day you're feeling strong and your spirits are high, and shortly thereafter you are down in the dumps again. The relapses can be particularly taxing, and in periods of crisis, intense disappointment and sorrow have got to be expected. But these temporary setbacks don't mean the person has forfeited all claim to hope. What can you do to keep hope alive ? 在症状加重或者住院的时候,在你被诊断为MG的周年纪念日的时候,或者在你看医生时,在你看到别人做了你永远都做不了的事情的时候,你的情绪都会滑向深渊.得了重肌就象驾驶了一辆情绪的环滑车,有时你会感觉强壮,你的情绪也很高,但是有时你会马上就再次被抑郁击到.复发可能带给你更大的烦恼,在紧急关头时,在非常失望和悲伤时.但是这种复发不意味着一个人丧失了所有的希望来抱怨.你怎样来让你的希望存活呢?

Here are what I call the 5C's - KEYS TO SURVIVAL
COPING ATTITUDE 这里是保持良好精神态度的关键的几点

Develop a positive attitude if you can and approach the disease as a challenge. Try to view yourself as a person with a problem, not as a person with troubles. People with troubles can only complain and be unhappy. People with problems can look for solutions.创立一个乐观的态度,把疾病当成一种挑战.尽量把你当成一个带有问题的人,这种问题又是可以被解决的.不可被解决的问题只能带来抱怨和不快乐.而可解决的问题总会有办法对付的.

CONTROL YOUR OWN DESTINY

Actively participate in your own care, and make decisions on your own to improve the quality of your life. If you feel a nutritionist would be a good idea, insist on a referral. You have the right to be heard and listened to and the responsibility to make your needs known. Take charge of your life.

COMMITMENT

Commit yourself to a cause that is important to you, to something you value - whether it's your job, family, school, your health or a religious cause. Focus your energies on something or someone you care about.

CONFIDE IN OTHERS

Share the burdens of your illness, allow yourself to ask for help and accept periods of dependency when necessary. Admit when you hurt. Allow yourself to feel and know that you will heal. Vent the pent up emotions. Try to maintain a good relationship with your doctor, if possible, and with other members of the health care team. Contact fellow patients and friends. Try to preserve important relationships with relatives, in spite of all the stresses imposed on the family unit.

HAVE CONFIDENCE IN YOURSELF

Believe in your own abilities and inner strength. Seek all the information you can come by; be an informed consumer; and use all the resources and knowledge available.
YOU HAVE TO BELIEVE IN YOURSELF
Printed with the kind permission of the American Foundation of AMPS Garden State Chapter.

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