以下资料全部来自英国的

 Summary of the MGA Medical

      Conference 2006      

Q 2: Can MG cause memory loss?

A: No, because the antibodies don’t get into the

brain.

Q: MG会引起记忆丧失吗？

A：不会，因为抗体不会到达脑部。

Q 4: Does MG tend to remit, to burn out or to get

worse? Can it be a life sentence?

A: MG usually reaches its worst within the first 5

years or so; some time after that, there is a good

chance that it will gradually subside. After its first

3 years or so, there is roughly a 1/40 chance of a

remission each year. BUT many patients do need

long-term immuno-suppressants. The good news:

these drugs do not lose their power as time goes

by, and MG rarely shortens life nowadays.

Q：MG的病态趋势会缓和吗，消失或者变得更遭？它会影响一生吗？

A：MG通常在大约起初的5年内是最严重的；5年之后，它很有可能会逐渐

有所变好。在这大约3年内，每年大概会有1/40的消除症状的可能性。

但是会有很多的患者需要长期的免疫性药物治疗。好消息是：这些药物

不会因时间的增长而失去药力，并且至今看来，MG几乎不会缩短寿命。

［此帖子已被 天那 在 2006-8-13 23:51:28 编辑过］

［此帖子已被 天那 在 2006-8-14 0:23:09 编辑过］

Q 5: How can the damaging autoimmune reaction

last so long?

A: One key feature of normal immune responses is

their long-term ‘memory’ – which protects us for

decades against a re-infection with the same germ.

‘Memory cells’ normally go dormant when the germ

is cleared: alas, when the target is part of our own

muscles (etc), it goes on re-awakening the memory

all the time, so perpetuating the response.

Q：损伤性的自身免疫反应会持续多久？

A：一个正常免疫反应的主要特点是它们的长期性的“记忆性”－－这种

“记忆性”会保护我们10年不会再感染同样的细菌。当细菌清除后，

“记忆细胞”通常是处于“睡眠”状态：可是，当（细菌）目标是我们

肌肉自身的一部分（生物体）时，它们（记忆细胞）便会总是处于再次

Q 7: What research has been done on possible

genetic or environmental triggers for MG? Why

aren’t more surveys done (eg at Conferences) to

search for them?

Q：关于基因（遗传）和环境会有可能引发MG的研究已经做完了吗？

为什么没有做更多的调查来研究MG（比如在这次会议上做调查问卷）？

Q 8: Can MG be inherited? Might other autoimmune

diseases in the family be another risk factor?

A: It’s extremely rare for autoimmune MG to strike

twice in the same family. BUT MG patients very

commonly have close blood relatives with other

autoimmune diseases with the same risk factor(s)

(like diabetes). There are probably other more

general ‘autoimmune genes’; these seem usually to

come from the mother.

Q：MG可以被遗传吗？家庭中其它的自身免疫性疾病有可能

会是另外一种（患上MG的）危险因素吗？

A：在同一家庭当中，（因为基因遗传引起的）患自身免疫性MG

的可能性极小。但是MG患者会有很大的可能性会被患有自身免疫性

疾病（如糖尿病）的亲密血缘关系的患者所遗传（他们所得的自身

免疫性疾病）。也有可能会有其它更多的一般的“自身免疫性基因”；

这些（上述遗传过程）通常多发生于母亲身上。

我所翻译的以上资料中会有很多不恰之处，希望发现错误的朋友们多多指出！！！尽我们所能的力量来帮助我大家！！我会陆续的追踪和翻译最新的国外资料的！！！愿我们大家一切都会好起来的！！！Believe Ourself  ! ! !

             MG的病理图示！！！

  Sources: National Institute of Neurological Disorders and Stroke; American Academy of Neurology; Myasthenia Gravis Foundation of America (Janet M. Torpy, MD, Writer; Tiffany J. Glass, MA, Illustrator; Richard M. Glass, MD, Editor )

  From: AMA, JAMA. 2005;293:1940 

［此帖子已被 天那 在 2006-8-14 0:20:53 编辑过］

辛苦你了，希望能多看到你为我们带来的翻译资料。

非常好非常感谢!

楼主辛苦了.

谢谢楼主,关注中...

感谢！

感谢楼主!真是好东西!继续观注!!

Q 10: Any advice about diet?

A: In general, it’s wise not to get overweight. Also,

difficulties in chewing and swallowing may make it

hard to take a balanced diet. You can get advice

on that from Dieticians, and from them or Speech

Therapists on preparing softer, sloppier meals.

Q:关于饮食的一些意见呢？

A：一般来说，体重不可以超标是最好的。同样地，吞咽困难和

吹气困难（的患者）也很难达到营养平衡。你可以咨询一下营养

师或语音方面的专家来吃一些营养丰富的饮食。

Q 11: Any suggestions about complementary

treatments?

A: Nothing specific, because there is no published

evidence on any of them in MG. However, if they

are safe and you can afford them, there is no harm

in trying some carefully, to see if they help you. For

example, anything that helps you relax may enable

you to make the most of your weak muscles.

Q：有什么有助于完全治愈的建议吗？

A：没有什么特别的办法，因为还没有发现任何绝对的好办法（

有助于完全治愈的）。然而在一定的安全范围内你可以小心地尝

试着一些办法。看看它们是否会对你有所帮助。比如你可以用

某些可以使你精神放松的办法来使你疲倦的肌肉得到最大程度的缓解。

Q 13: If Bird ‘Flu arrives, should I stop taking my

treatment?

A: No, you will probably need all your strength.

Q：如果得了禽流感是否应该停止治疗？

A：不，因为你需要尽可能的强壮起来。