sar3009 1 post 22-Nov-2007 10:20 AM

my husband has mg, he was diagnosed as a baby and was the 1st baby in britain(1972) to be diagnosed with mg, he had his thymus gland removed when he was 18 mths old and had medicine til he was 14/15, 我丈夫是重肌.他是英国第一个重肌婴儿.当他十八个月时他摘除了胸腺.他吃药吃到十四五岁.he was then discharged for great ormond street hospital as he was too old to be treated there and his meds stopped as they said he was in remission. the past few years he has been getting more and more tired and when i finnally got him to go docs they sent him for teast and surprise surprise the mg is back. he is 36 now and the docs have just upped the dose of mestinon to 60mg 5 x a day, they have also give him aptropine but luckily he does not need it. 他在great ormond street 医院接受治疗.但以为他太小了,当他症状缓解时医生就给他停药了.但近几年他感觉越来越疲劳,最后上医院,惊奇的是在他36岁时,MG又回来了.医生给他吃一天五片60mg的小明,他们也给他吃]阿托品(含颠茄碱)但幸运的是他已经不需要了.

sweetkerry 55 post s 23-Nov-2007 3:34 PM

wow im so sorry to hear i hope he gets better and everything works out for him, but i never knew they removed the thymus of children so young thanks for that info

［此帖子已被 忍冬花 在 2007-11-24 16:53:41 编辑过］

［此帖子已被 海蓝港湾 在 2007-11-25 6:40:14 编辑过］

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sweetkeyyr 写道： 老天，听到这些我好难过，我希望他好点。但是我从没有听说过切除如此小的孩子的胸腺。谢谢你提供的信息。

老大可以啊 我这是抛砖引玉呵呵

看来国外的医学也没特别发达啊